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A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study

Sonja Beckmann, Oliver Mauthner, Liz Schick, Jessica Rochat, Christian Lovis, Annette Boehler, Isabelle Binet, Uyen Huynh-Do, Sabina De Geest, Psychosocial Interest Group & Swiss Transplant Cohort Study

abstract We aimed to identify, assess, compare and map research priorities of patients and professionals in the Swiss Transplant Cohort Study. The project followed 3 steps. 1) Focus group interviews identified patients' ( = 22) research priorities. 2) A nationwide survey assessed and compared the priorities in 292 patients and 175 professionals. 3) Priorities were mapped to the 4 levels of Bronfenbrenner's ecological framework. The 13 research priorities (financial pressure, medication taking, continuity of care, emotional well-being, return to work, trustful relationships, person-centredness, organization of care, exercise and physical fitness, graft functioning, pregnancy, peer contact and public knowledge of transplantation), addressed all framework levels: patient ( = 7), micro ( = 3), meso ( = 2), and macro ( = 1). Comparing each group's top 10 priorities revealed that continuity of care received highest importance rating from both (92.2% patients, 92.5% professionals), with 3 more agreements between the groups. Otherwise, perspectives were more diverse than congruent: Patients emphasized patient level priorities (emotional well-being, graft functioning, return to work), professionals those on the meso level (continuity of care, organization of care). Patients' research priorities highlighted a need to expand research to the micro, meso and macro level. Discrepancies should be recognized to avoid understudying topics that are more important to professionals than to patients.
   
citation Beckmann S, Mauthner O, Schick L, Rochat J, Lovis C, Boehler A, Binet I, Huynh-Do U, De Geest S, Psychosocial Interest Group , Swiss Transplant Cohort Study . A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study. Transpl Int 2022; 35:10255.
   
type journal paper/review (English)
date of publishing 18-05-2022
journal title Transpl Int (35)
ISSN electronic 1432-2277
pages 10255
PubMed 35664427
DOI 10.3389/ti.2022.10255